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Newborn Screening for Sickle Cell Disease

In Virginia, all newborns are screened for sickle cell disease. This effort has dramatically reduced the number of deaths from life threatening complications through:

• Identification and confirmation of disease status prior to onset of clinical symptoms
• Enrollment of families into a comprehensive care plan that includes parent education and support
• Early administration of prophylactic penicillin
Comprehensive Care for Newborns
Comprehensive care represents a partnership between the primary care provider and a medical center staffed with professionals sensitive to the medical and social needs of individuals and families living with sickle cell disease. Comprehensive Sickle Cell Clinics are designed to enhance the resources of both providers and families.


Referral Sites For Pediatric Comprehensive Sickle Cell Services

Central

Contact Numbers

Virginia Commonwealth University Health System
Department of Pediatrics
Division of Hematology/Oncology
E. Clifton Russell, MD – Consultant

(804) 828-9605 (Main Office)

Eastern

 

Children’s Hospital of the King’s Daughters
Department of Pediatrics
Division of Hematology/Oncology
William Owen, MD – Consultant

(757) 668-7246

Northern Virginia - Annandale

 

Inova Fairfax Hospital for Children
for Pediatric Sickle Cell Center

(703) 876-2715

Western – Charlottesville and Roanoke

 

University of Virginia Medical School
Department of Pediatrics, Hematology/Oncology
Peter Waldron, MD - Consultant

(434) 924-5105

Carilion Roanoke Community Hospital
Department of Pediatrics
Division of Hematology/Oncology
Joan Fisher, MD, Ph.D., Consultant

 (540) 985-8055

Professional

Clinical Practice Guidelines and Counseling Tools

Health Supervision for Children with Sickle Cell Disease
American Academy of Pediatrics
Policy Statement
Pediatrics, Volume 109, Number 3
March 2002, pp 526-535http://aappolicy.aappublications.org/cgi/content/full/pediatrics;109
/3/526?fulltext=sickle+cell&searchid=QID_NOT_SET

Critical Elements of Care on Sickle Cell
Center for Children with Special Needs
Children's Hospital and Regional Medical Center Seattle, WA
Critical Elements of Care on Sickle Cell a 43 page pediatric care guidebook
http://www.cshcn.org/resources/CEC.htm
for the Adobe version
http://www.cshcn.org/forms/SickleCell_5-03.pdf


A Counseling Handbook for Sickle Cell and Other Hemoglobinopathies
The Virginia Sickle Cell Awareness Program
A complete guide for counseling and education for the most common hemoglobin variants identified through Virginia’s sickle cell screening program. PDF File


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Contact us at Jene.Radcliffe-Shipman@vdh.virginia.gov
109 Governor St., Richmond, VA 23219
Phone: (804) 864-7769
Fax: (804)864-7771

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Last Updated: 06-30-2008

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