Newborn Screening for Sickle Cell Disease

Comprehensive Care

In Virginia, all newborns are screened for sickle cell disease. This effort has dramatically reduced the number of deaths from life threatening complications through:

• Identification and confirmation of disease status prior to onset of clinical symptoms
• Enrollment of families into a comprehensive care plan that includes parent education and support
• Early administration of prophylactic penicillin
Comprehensive Care for NewbornsComprehensive care represents a partnership between the primary care provider and a medical center staffed with professionals sensitive to the medical and social needs of individuals and families living with sickle cell disease. Comprehensive Sickle Cell Clinics are designed to enhance the resources of both providers and families.

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Referral Sites For Pediatric Comprehensive Sickle Cell Services

Central Contact Numbers Virginia Commonwealth University Health System Department of Pediatrics Division of Hematology/Oncology Kamar Godder, MD, – Consultant P.O. Box 980121 Richmond, Virginia 23298-0121 (804) 828-4879 Phone (804) 828-0554 Fax Eastern   Children’s Hospital of the King’s Daughters Department of Pediatrics Division of Hematology/Oncology William Owen, MD – Consultant 601 Children’s Lane Norfolk, Virginia 23507-1971 (757) 668-7246 Phone (757) 668-7811 Fax Northern Virginia - Annandale   Inova Fairfax Hospital for Children Northern Virginia Sickle Cell Center Marshall Schorin, MD - Consultant 3300 Gallows Road Tower 4, Room 4006 Falls Church, VA 22042 (703) 776-4445 Phone (703) 776-4446 Fax Western – Charlottesville and Roanoke   University of Virginia Medical School Department of Pediatrics, Hematology/Oncology Peter Waldron, MD - Consultant P.O. Box 800386 HSC, University of Virginia Charlottesville, Virginia 22908 (434) 924-8499 Phone (434) 924-5452 Fax Carilion Roanoke Community Hospital Department of Pediatrics Division of Hematology/Oncology Mandy M. Meck, MD – Consultant 102 Highland Avenue, Suite 435 Roanoke, Virginia 24029-2946 (540) 985-8055 Phone (540) 985-5306 Fax

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Professional

Clinical Practice Guidelines and Counseling Tools

Health Supervision for Children with Sickle Cell Disease
American Academy of Pediatrics
Policy Statement
Pediatrics, Volume 109, Number 3
March 2002, pp 526-535http://aappolicy.aappublications.org/cgi/content/full/pediatrics;109
/3/526?fulltext=sickle+cell&searchid=QID_NOT_SET

Critical Elements of Care on Sickle Cell
Center for Children with Special Needs
Children's Hospital and Regional Medical Center Seattle, WA
Critical Elements of Care on Sickle Cell a 43 page pediatric care guidebook
http://www.cshcn.org/resources/CEC.htm
for the Adobe version
http://www.cshcn.org/forms/SickleCell_5-03.pdf

A Counseling Handbook for Sickle Cell and Other Hemoglobinopathies
The Virginia Sickle Cell Awareness Program
A complete guide for counseling and education for the most common hemoglobin variants identified through Virginia’s sickle cell screening program. PDF File

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