Just because you read it on the Internet does not necessarily make it
a fact. Please make sure your information comes from reputable sites.
University based sickle cell centers are an excellent source of reliable
information on current sickle cell education, research, and care.
Sickle Cell Information Center. The most comprehensive
link for sickle cell education, information and research can be found
at the Sickle Cell Information Center. The mission of this site is to
provide sickle cell patient and professional education, news, research
updates and world wide sickle cell resources. This is your one stop link.
Grady Memorial Hospital, Atlanta, GA
SickleCellKids.org is a user friendly web site
to teach children, teachers and parents all about living with sickle cell
disease.
Sickle Cell Disease Association of America
A state by state listing of member chapters where you can obtain sickle
cell information and local referrals is located on their website.
The National Newborn Screening and Genetics Resource Center
(NNSGRC) is a cooperative agreement between the Maternal and
Child Health Bureau (MCHB), Genetic Services Branch and the University
of Texas Health Science Center at San Antonio (UTHSCSA), Department of
Pediatrics.
The mission of the NNSGRC is to: provide a forum for interaction between
consumers, health care professionals, researchers, organizations, and
policy makers in refining and developing public health newborn screening
and genetics programs; and to serve as a national resource center for
information and education in the areas of newborn screening and genetics.
