Birth Defects Surveillance, Research, and Prevention: Using the Data
This report gives each of the 50 states, plus the District of Columbia and Puerto Rico, a letter grade based on their efforts to monitor and research birth defects.
Congenital Malformations Surveillance Report, Teratology 61:1-3 (2000)
http://www.nbdpn.org/NBDPN/report2000/index.html, Published in the January/February 2000 issue of Teratology 61(1/2):1-160. Available here online in PDF.
National Newborn Screening and Genetics Resource Center
http://genes-r-us.uthscsa.edu/
The National Newborn Screening and Genetics Resource Center (NNSGRC) is a cooperative agreement between the Maternal and Child Health Bureau (MCHB), Genetic Services Branch and the University of Texas Health Science Center at San Antonio (UTHSCSA), Department of Pediatrics.
Newborn Screening Fact Sheets, AAP
http://www.aap.org/policy/01565.html
These newborn screening fact sheets were developed by the Committee on Genetics of the American Academy of Pediatrics (AAP) (1996).
Newborn Screening Publicaions, Texas Department of Health
https://www.tdh.state.tx.us/newborn/pubs.htm
Includes multiple parent information pamplets that are written in English and Spanish (En Español).
Newborn Screening Tests Fact Sheet, MOD
Answers to some common questions parents ask about newborn screening tests; developed by the March of Dimes.
Newborn Screening Tests--Neonatology on the Web
http://www.neonatology.org/syllabus/newborn.screen.html
Overview of the history of newborn screening and a list of which tests are performed in which states of the US. Includes disease descriptions.
Newborn Screening for Congenital Hypothyroidism: Recommended Guidelines, AAP
http://aappolicy.aappublications.org/ cgi/content/abstract/pediatrics;91/6/1203
Virginia Birth Defect Counts and Rates by Race, 1989 - 1996
http://www.cdc.gov/ncbddd/bd/default.htm
From Birth Defect Surveillance Data from Selected States, 1989 - 1996, National Birth Defects Prevention Network.
Virginia Center for Health Statistics
http://www.vdh.virginia.gov/healthstats/index.asp
The Virginia Center for Health Statistics collects and disseminates vital records data, conducts research and produces reports which help guide health policy issues affecting the Commonwealth.
http://peristats.modimes.org/statestep1.cfm?state_id=51
From PeriStats , an interactive perinatal resources, sponsored by the March of Dimes.
Virginia Congenital Anomalies Reporting and Education System: Birth Defect Surveillance Data 1989-1998.
The complete report is available online as a PDF document at the following address:
http://www.vahealth.org//genetics/documents/docs2006/PDF/ VaCARES_Report_1989-1998.pdf
The report data are available online as an interactive Web site at the following address:
https://vdhems.vdh.virginia.gov/pls/vacares/vacares.main
Links to organizations found at this site are provided solely as a service to our users. These links do not constitute an endorsement of these organizations or their programs by the Virginia Department of Health, and none should be inferred. The Virginia Department of Health is not responsible for the content of the individual organization web pages found at these links.
Contact us at sharonk.williams@vdh.virginia.gov
Sharon Williams, R.N., M.S.
Virginia Genetics Program Manager
Virginia Department of Health
Division of Child and Adolescent Health
109 Governor Street, 8th Floor, Richmond, Virginia 23219
Phone: (804) 864-7712 FAX: (804) 864-7807
