This parent brochure explains the need for the program, the disorders the testing covers, the method and cost, the meaning of a "retest" and importance of meeting with a physician to discuss treatment.
Spanish Padre Fact Sheets
English Parent Fact Sheets
Congenital Adrenal Hyperplasia (CAH): Health-Care Provider Presentation
This slide show provides an introduction for the health-care professional on newly required screening test Congenital Adrenal Hyperplasia.
To download the Microsoft PowerPoint Presentation, click Professional Presentation - Congenital Adrenal Hyperplasia (ppt)
What Every Family Should Know About Preventing Birth Defects
En Español -- Lo que toda familia debe saber sobre prevención de los defectos congénitos
Fact Sheets
Virginia Congenital Anomalies Reporting and Education System: Birth
Defect Surveillance Data 1989-1998.
Birth Defects, Genetics, and Newborn Screening Fact Sheets, MOD
Access to March of Dimes (MOD) health library fact sheets, including:
Birth Defects Tracking and Prevention: Too Many States Are Not Making the Grade, TFAH, 2002
The report, authored by Trust for American's Health (TFAH), gives each of the 50 states, plus the District of Columbia and Puerto Rico, a letter grade based on their efforts to monitor and research birth defects.
Only eight states receive an A, although even they need improvement, the report says. More than half the states received a C, a D or an F. Virginia received a B.
This online weekly update provides information about the impact of human genetic research on disease prevention and public health.
Genetics On-Line Presentations, CDC
Access to online genetics and disease prevention lectures, slides, audio, video.
www.cdc.gov/mmwr/PDF/RR/RR5003.pdf
This work group report contains proposals for planning, operating, and evaluating tandem mass spectrometry (MS/MS) technology in newborn screening and maternal and child health programs.
Links to organizations found at this site are provided solely as a service to our users. These links do not constitute an endorsement of these organizations or their programs by the Virginia Department of Health, and none should be inferred. The Virginia Department of Health is not responsible for the content of the individual organization web pages found at these links.
Contact us at sharonk.williams@vdh.virginia.gov
Sharon Williams, R.N., M.S.
Virginia Genetics Program Manager
Virginia Department of Health
Division of Child and Adolescent Health
109 Governor Street, 8th Floor, Richmond, Virginia 23219
Phone: (804) 864-7712 FAX: (804) 864-7807
